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‘Exercise Effect in MG’ Pilot Study

Posted on Thursday, 27 December 2012

Exercises at Home

Doctor Jennifer Nitz, who conducted the ‘Exercise Effect in Myasthenia Gravis’ Pilot Study at the University of Queensland’s Neurological, Ageing and Balance Clinic, has kindly provided the Association with a booklet entitled ‘Preventative Health – Exercise for your Bones, Strength and Balance.’

The booklet details exercises which closely match those which were undertaken by participants in the abovementioned Study and are such that they can be undertaken by people in the comfort of their own home.

Each copy of the booklet comes with Cautionary Notes which should be read and understood before commencing any of the exercises.

Copies of the booklet are available, in either hard copy or electronic form (pdf), to current financial members. Those members wishing to obtain a copy should contact the Association on our Freecall number 1800 802 568 or via email at info@mgaq.org.au and state whether you prefer hard copy or email copy.

Copyright of the booklet remains the property of Dr. Nitz and the University of Queensland and should not be reproduced in any form without their express permission.

Also, if you have a try at these exercises and feel that you would like to undertake the complete set as part of the Exercise Study Project, and therefore contribute to the Study findings, please contact the Secretary on (07) 32884484 or via email at info@mgaq.org.au

"Survey Snippet"

Auto-immune connection.

The survey showed that 54% of MG sufferers have at least one other auto-immune condition and 39% of sufferers have other family members with an auto-immune condition.

Examples of the respondent's conditions included Psoriasis, Rheumatoid Arthritis, Thyroid Disease, Vitiligo, ITP, Type 1 Diabetes Mellitus, Coeliac or Crohn's Disease and Pernicious Anaemia.

These high figures were clearly of interest to the doctors and may help explain some of the variations we all experience.

Are you interested in telling of your experience with multiple auto-immune conditions? We would love to hear from you in the Members’ Forum.