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Collecting data on sufferers of myasthenia gravis

Posted on Thursday, 27 December 2012

As highlighted in the last Project Update, the response to our survey has been overwhelming and the Medical Fraternity are keen to explore some of the statistics further so to assist we say again that we want more sufferers (especially younger ones) to complete the questionnaires. If you can spread the word please do.

We are also quite excited by the idea of publishing a small book to tell of sufferers experiences with the condition and would love to hear from anybody interesting in helping with this project. This would be more about the qualitative findings of the survey whilst the Doctors investigate the hard statistics.

As everyone agreed, there were many interesting points in Doctor Blum's presentation and these will be explored further in the "Survey Snippets" item below.