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Collecting data on sufferers of myasthenia gravis

Posted on Thursday, 13 February 2014

A report discussing the economic impact of Myasthenia Gravis on the community and the individual is now available in full via the MGAQ website (www.mgaq.org.au). This report was commissioned by the Association in conjunction with the Dr Blum and Professor McCombe at the RBWH and was prepared by The CIE. "The Centre for International Economics, a Canberra and Sydney based firm is Australia's oldest independent economics consultancy, with experience across most areas of contemporary economics. With a dedicated health economics practice, the CIE has a deep understanding of the health sector and extensive expertise in health sector economic evaluation, economic modeling and providing policy advice to a government, industry or clinical audience.

The report highlights the personal costs of suffering from this condition as well as giving some insight into the community costs associated with this chronic condition. The personal costs fan out to include the immediate family as well as the individual. It is an interesting and informative read (not too lengthy) and we hope that it will generate much conversation and understanding within the wider community. We encourage our members to read it, to discuss it with others and to promote it generally. The costings show how modern treatments can be beneficial economically as, despite the expense, they allow people to remain in the workforce. Research aimed at ultimately reducing the disease cost should be encouraged. Your feedback on the report is welcome. Please respond via the website.