News

In  March 2019, more than two and a half years ago, an MGAQ member, who lives in Regional Qld, contacted the Association to share a story. The member's family had made contact with the local Federal Member hoping to receive some support in accessing a particular medication at a reasonable price. The medication was Rituximab (a B cell suppressing medication) and it was not PBS supported for myasthenia patients. Local Federal Member, Keith Pitt, joined with the Association and also Dr Kuyler, to write to Minister Hunt.

Thank you, thank you, thank you to ALL the people who have ensured that we are half way to the minimum target numbers already! This support is very gratifying and much appreciated. Some respondents are not technology users but have asked for help and made it happen. What stars you are!!! 
Meeting the completion target by Christmas - how can this objective become a reality?

An interesting and informative podcast has been produced to discuss the latest myasthenia research project. Prof. Steve Vucic, the project’s lead researcher, explains the value of this work and the unique potential for this patient reported survey. Take the 11mins needed to hear him by requesting the podcast from podcast@mgaq.org.au.

Our Christmas Function will be held on 

Sunday, 12 December
at the Caloundra Power Boat Club, 
2 Lamerough Parade, Golden Beach 
11.30 am for 12 noon

More details in the upcoming MGAQ November newsletter.

Recommendations on the use of a 3rd Primary Dose of COVID-19 Vaccinations for People Severely Immunocompromised

The Federal advisory body ATAGI (Australian Technical Advisory Group on Immunisation) has recommended a booster/supplemental Covid-19 vaccination for those who are heavily immune suppressed. The Health Minister has indicated that this will be available from 11 October. This gives the MG community a chance to strengthen our response to the vaccine and increase our safety. It is available in the period 2-6 months post the second vaccine.

Our Christmas Function will be held on 

Sunday, 12 December
at the Caloundra Power Boat Club, 
2 Lamerough Parade, Golden Beach 
11.30 am for 12 noon

More details in the upcoming MGAQ October newsletter.

The following were elected to the Management Committee until the 2022 AGM:

President: Carol Buchanan

Vice-President: Susan White

Secretary: Yvonne Hornby-Turner

treasurer: Denise Hannay

Committee Members: Anita Jackson, Donna Formosa, Roslyn Holland, Karen Downes, Kirstine Shrubsole, Craig Streatfield.

The Myasthenia Alliance Australia Requests Your MG Story for Research! 

The “Myasthenia Gravis Patient Reported Outcome Survey” Research Project is now ready for patient input! Please take the time to tell of your experiences with the available range of Myasthenia Gravis treatments and also indicate if there are any resultant issues which have required additional medical attention.

This significant, highly professional and exclusively Australian research project aims to give

MGAQ AGM – Sunday, 12 September 10.00am sharp

Aspley Hornet's Football Club, 50 Graham Road, Carseldine

Attend AGM either in Person or Via Zoom – Your choice!

As our Annual General Meeting will practise Social Distancing, RSVP is essential by Wednesday, 8 September 2021.

The Podcast team require your help.

What is the special little thing you do to help yourself in doing an activity you enjoy on a day your symptoms are playing up?

If you would like to share your special hint, please email podcast@mgaq.org.au.