Last Chance to Help Shape Future MG Treatment Choices
Living with myasthenia gravis means treatment decisions are rarely straightforward.
For many people, it is not just about whether a treatment works. It is also about how quickly it helps, the possible side effects, the travel involved, time away from work or family, and the financial impact that can come with ongoing care.
Researchers at Monash University, together with Myasthenia Alliance Australia, are currently seeking more participants for the VALUE-Ig survey before recruitment closes.
This important research focuses on understanding what matters most to people living with myasthenia gravis when making treatment decisions during mild exacerbations.
The survey has been co-designed with people living with MG to ensure patient voices remain at the centre of future care discussions and treatment pathways.
Why Your Participation Matters
Every person living with MG experiences the condition differently.
By sharing your experience, you can help researchers better understand:
- what influences treatment decisions
- the real-life impact of treatment options
- the challenges patients face during mild exacerbations
- what patients value most when considering care
Insights gathered through this survey may help improve future understanding of patient priorities and support more patient-informed approaches to care.
Who Can Participate?
Adults aged 18 years and over with a diagnosis of myasthenia gravis are invited to take part.
The survey takes approximately 20 minutes to complete.
Participants will receive a $20 AUD e-gift card as a thank you for their time.
Final Opportunity to Participate
Recruitment for the VALUE-Ig survey is closing soon.
If you would like your lived experience to help shape future conversations around MG treatment and patient care, we encourage you to participate while the survey remains open.