News

Susan White, MAA President, is delighted to be attending the Parliamentary Event to be held in Canberra, on Wednesday, February 26th in celebration of Rare Diseases Day. Dr Mike Freelander MP, Mr Trent Zimmerman MP and Rare Voices Australia will host the day. Health Minister, Greg Hunt, is to launch the National Strategic Action Plan for Rare Diseases. It will be a significant day.

Coffee & Chats are a good opportunity to connect with people in your area. All are welcome.

For more information, contact Anita on 0414 588 312

2020 MGAQ "Coffee & Chats" has been a successful opportunity for people with Myasthenia Gravis or their carers to connect with others in the Brisbane area.

We are now planning for 2020 and would like to know which of these venues you would attend.

Brisbane North

Brisbane South

Brisbane West

Inner Brisbane

Logan

“Tell us about your unexpected highlight from attending the 3rd National Myasthenia Conference!”

This competition is open to everyone who attended the conference. All attendees will be notified of this opportunity.

The prize offered by Enjo Australia, Conference Sponsor, in conjunction with the MGAQ is an Enjo Kitchen Bundle valued at $179.00.

Please write a response to this question and submit it to: info@mgaq.org.au or post to PO Box 1287, New Farm 4005 by 10 December, 2019.

You are invited to the 2019 MGAQ Christmas Function

Sunday, 15 December - 11.30am for 12 noon

at Southport Sharks Club, Olsen Ave &, Musgrave Ave, Southport QLD 4215

RSVP: Susan Freecall 1800 802 568 - E: info@mgaq.org.au

Tuesday, December 10

New information about medications that can worsen symptoms in patients suffering from myasthenia gravis (MG) has been published on the MAA website. This list is designed as an aid to assist guiding therapeutic decisions for MG patients and their doctors.

Click here for details. A link to this information has also been added in the resources section of the MGAQ website.

Election of Office Bearers for 2019-2020

The following were elected to the Management Committee until the 2020 AGM: 

President: Carol Buchanan 

Vice-President: Susan White

Secretary: Ron Stephen

Treasurer: Denise Hannay 

Committee Members:

Anita Jackson, Rosalyn Holland, 

The MAA Board remains focused on its range of objectives which include:- 

“Tell us about your unexpected highlight from attending the 3rd National Myasthenia Conference!”

This competition is open to everyone who attended the conference. All attendees will be notified of this opportunity.

The prize offered by Enjo Australia, Conference Sponsor, in conjunction with the MGAQ is an Enjo Kitchen Bundle valued at $179.00.

Please write a response to this question and submit it to info@mgaq.org.au or post to PO Box 1287, New Farm 4005 by 10 December, 2019.

To support the MGAQ Organisation

Meeting Host - Make a home available to host up to 11 attendees at monthly committee meetings. Meetings held every 2nd Saturday of the month (except January) from 8.30am-3.30pm. Requirements include 35 minute access to airport, landline facility (no significant costs), reasonable parking access. Not necessarily a Committee person. Back-up venues available if needed.

URGENT - POSITION VACANT ON EXECUTIVE.

Legislatively, we MUST have a Secretary for the association.  This person does not have to be highly skilled as the hand-over of responsibilities will be staggered with much support from other committee members. We are looking for someone who is prepared to accept responsibility, meet required timelines and is prepared to communicate in a timely manner with other members of the committee via phone calls and email.