Watch the presentation with Louise Healy HERE
Louise Healy is the Education and Advocacy Queensland Manager at Rare Voices Australia (RVA). Louise’s connection with rare conditions began when her first child was born with a rare metabolic disorder. Louise has been involved in rare disease support and advocacy for over 10 years and has led successful advocacy campaigns for access to medicines and support programs for people with rare disorders of protein metabolism. Louise is a previous RVA Board member, current member of the Queensland Genomics Community Advisory Board and a founding board member of the Global Association for PKU.
Louise presented at the 2023 fourth National Patient Focussed Myasthenia Gravis Conference in Sydney where she provided invaluable insights into effective advocacy for rare diseases.
MGAQ thanks the MAA and all involved in organising the 2023 Conference and the various speakers who gave their valuable time to share the expertise on current and upcoming treatments, advocacy for rare diseases and the importance of allied health therapies in alleviating some Myasthenia Gravis symptoms.