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14Nov

Myasthenia Alliance Australia Conference 2019

It is with great satisfaction that the Committee announces a third Myasthenia Gravis Conference will be held on Saturday, 13 July, 2019. It will be a full day programme hosted at the TRI (Translational Research Institute Australia) building found on the Princess Alexandra Hospital site in Brisbane, Queensland. This is a preliminary announcement allowing people plenty of time to plan for the day. You may contact the MGAQ Freecall number on...

14Nov

eNID Project - Fundraising Part II

Conversations with the 'eNID Project Working Group’ continued this month. MSBase confirm that their work is progressing as outlined in the Project Update included in the October newsletter. Confirmation regarding funding support from the Pharmaceutical Companies is still pending.

The MAA have indicated to the working group that we are committed to raising a further $45,000.00 as requested.
See below for an indication of our progress. 

For people interested in...

14Nov

Meet the Committee Date - Townsville

12 noon, Saturday, 24 November,
The Avenues Hotel, 270 Kern Bros Drive, Kirwan

The management committee feels it is important for members from across the state to meet and chat with some of our committee.
Therefore, over a period of time, two members from the management committee will travel to each of the areas.
The regional co-ordinators will negotiate with the committee re the most suitable time of the year and these will be advertised in...

6Nov

MAA News - Working For You

The Alliance Committee have been meeting at least once a month for the majority of this year and working diligently for its supporters between times. Current projects include planning for a conference in 2019. We are working with Dr Blum to create a Brisbane conference mid 2019. Dr Blum is also chairperson of the newly formed Medical Advisory Group available to the Alliance committee for advice on Myasthenia related issues. We thank him for his particular interest in the work of the Alliance...

6Nov

MAA News - Rituximab Questionnaire

A questionnaire was made available regarding access to this treatment option. Many people responded and the shared information was diverse. Many people have not been offered this treatment. For some, it has been discussed but it has not been a viable choice for varying reasons. For others, this treatment has been used and for most it has been provided by a major hospital for no or little cost to the patient. There are a number of people who have chosen this treatment but...
6Nov

MAA News - MG Versus MGen

An unfortunate media release occurred in July this year. In discussing the Sexually Transmitted Infection, Mycoplasma genitalium (Mgen), a reference was made to this condition using the acronym MG. This is not the standard abbreviation used for this condition but unfortunately it was picked up by the journalists as a good headline. The article was shared with multiple media outlets and came to our attention via concerned members. Many letters have been sent from the Alliance highlighting the...

1Nov

From the President

- Current financial members should have received a copy, either by mail or email, of the President’s
...
1Nov

eNID Project News

As discussed in last month’s newsletter, the Committee anticipated becoming more involved with the MSBase working group for the eNID project. This
...
1Nov

Henk shares his experiences with Pilates

I have been a longtime receiver of the great benefits of Pilates exercises. During that that time I had the privilege of attending so called “Clinical Private Consultations”
...
3Oct

Annual General Meeting September 9

Our Annual General Meeting was held on Sunday, 9 September with approximately 30 people in attendance.  A big thank you to those who made the effort to come and support your association.    It was great to see that most people took the opportunity to stay for lunch and chat with friends old...

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