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MAA Myasthenia Gravis Conference 2019

MAA Myasthenia Gravis Conference 2019
SAVE THE DATE - July 13, 2019
For more information: Freecall 1800 802


MGAQ Inc. Christmas Function

Thank you to everyone who attended the MGAQ Christmas Function on Sunday,

9 December at the South Club, Mt Gravatt.

It was evident with the continuous chatter and smiling faces, that everyone enjoyed the atmosphere and food and the opportunity to share in the celebrations of the Christmas season.


A Word from Rare Voices Australia

Summary of article released by Nicole Millis, Chief Executive Officer, Rare Voices Australia

(MGAQ partner with Rare Voices Australia)

A lot can happen in a month! The Australian Government has committed to a National Rare Disease Framework.  While opening our recent National Rare Disease Summit, Minister Hunt announced the Government’s commitment to a National Rare Disease Framework, the development of which is to be led by...


Myasthenia Alliance Australia Conference 2019

It is with great satisfaction that the Committee announces a third Myasthenia Gravis Conference will be held on Saturday, 13 July, 2019. It will be a full day programme hosted at the TRI (Translational Research Institute Australia) building found on the Princess Alexandra Hospital site in Brisbane, Queensland. This is a preliminary announcement allowing people plenty of time to plan for the day. You may contact the MGAQ Freecall number on...


eNID Project - Fundraising Part II

Conversations with the 'eNID Project Working Group’ continued this month. MSBase confirm that their work is progressing as outlined in the Project Update included in the October newsletter. Confirmation regarding funding support from the Pharmaceutical Companies is still pending.

The MAA have indicated to the working group that we are committed to raising a further $45,000.00 as requested.
See below for an indication of our progress. 

For people interested in...


Meet the Committee Date - Townsville

12 noon, Saturday, 24 November,
The Avenues Hotel, 270 Kern Bros Drive, Kirwan

The management committee feels it is important for members from across the state to meet and chat with some of our committee.
Therefore, over a period of time, two members from the management committee will travel to each of the areas.
The regional co-ordinators will negotiate with the committee re the most suitable time of the year and these will be advertised in...


MAA News - Working For You

The Alliance Committee have been meeting at least once a month for the majority of this year and working diligently for its supporters between times. Current projects include planning for a conference in 2019. We are working with Dr Blum to create a Brisbane conference mid 2019. Dr Blum is also chairperson of the newly formed Medical Advisory Group available to the Alliance committee for advice on Myasthenia related issues. We thank him for his particular interest in the work of the Alliance...


MAA News - Rituximab Questionnaire

A questionnaire was made available regarding access to this treatment option. Many people responded and the shared information was diverse. Many people have not been offered this treatment. For some, it has been discussed but it has not been a viable choice for varying reasons. For others, this treatment has been used and for most it has been provided by a major hospital for no or little cost to the patient. There are a number of people who have chosen this treatment but...

MAA News - MG Versus MGen

An unfortunate media release occurred in July this year. In discussing the Sexually Transmitted Infection, Mycoplasma genitalium (Mgen), a reference was made to this condition using the acronym MG. This is not the standard abbreviation used for this condition but unfortunately it was picked up by the journalists as a good headline. The article was shared with multiple media outlets and came to our attention via concerned members. Many letters have been sent from the Alliance highlighting the...


Henk shares his experiences with Pilates

I have been a longtime receiver of the great benefits of Pilates exercises. During that that time I had the privilege of attending so called “Clinical Private Consultations”