News

How do we truly understand what life is like for someone living with myasthenia gravis?

In this insightful webinar, Dr Carlo Antozzi, Senior Neurologist and Head of the Neuroimmunology and Neuromuscular Diseases Unit at the Besta Neurological Institute in Milan, takes us inside the evolving world of MG care - one where patients’ voices are finally being heard as loudly as the data.

Myasthenia Alliance Australia (MAA) are delighted to invite you to an informative webinar with Nurse Practitioner Jenny Stofmeel.

🗓️ Tuesday 28th October 2025

⏰ 5:30pm – 6:30pm AEST

Another opportunity to share your experience and preferences about treatments – make a PBAC submission for Vyvgart® in subcutaneous injection form

The MAA would like to hear from ALL Australians diagnosed with CMS. We need to capture your numbers (parents/guardians can respond on behalf of children). We also want to learn about your experiences here in Australia regarding accessing Ruzurgi/Amifampridine/3,4-DAP as a treatment option.

Myasthenia Alliance Australia is delighted to remind our community of an important upcoming event.

📅 Date: Monday 15 September
🕛 Time: 12:30pm - 2:00pm
📍 Location: Rydges South Bank, Brisbane

In May this year, people who are both a patient and patient advocate or representative came together in Den Haag, in The Netherlands. We came from about 15 different countries. I had not met one of them before arriving there, and yet I felt immediately at home.

The MAA captured some invaluable information about our community as a part of the webinar hosted in January 2025. The webinar heard from leading Specialists who explained the new treatments which are currently seeking PBS funding. This webinar can be viewed here.