The Alliance Committee have been meeting at least once a month for the majority of this year and working diligently for its supporters between times. Current projects include planning for a conference in 2019. We are working with Dr Blum to create a Brisbane conference mid 2019. Dr Blum is also chairperson of the newly formed Medical Advisory Group available to the Alliance committee for advice on Myasthenia related issues. We thank him for his particular interest in the work of the Alliance…

A questionnaire was made available regarding access to this treatment option. Many people responded and the shared information was diverse. Many people have not been offered this treatment. For some, it has been discussed but it has not been a viable choice for varying reasons. For others, this treatment has been used and for most it has been provided by a major hospital for no or little cost to the patient. There are a number of people who have chosen this treatment but…

An unfortunate media release occurred in July this year. In discussing the Sexually Transmitted Infection, Mycoplasma genitalium (Mgen), a reference was made to this condition using the acronym MG. This is not the standard abbreviation used for this condition but unfortunately it was picked up by the journalists as a good headline. The article was shared with multiple media outlets and came to our attention via concerned members. Many letters have been sent from the Alliance highlighting the…

As discussed in last month’s newsletter, the Committee anticipated becoming more involved with the MSBase working group for the eNID project. This
- Current financial members should have received a copy, either by mail or email, of the President’s
I have been a longtime receiver of the great benefits of Pilates exercises. During that that time I had the privilege of attending so called “Clinical Private Consultations”

Since the newsletter went to publication we have been very lucky to have someone nominate for the permanent position of Secretary of the MGAQ.  More on this in the next newsletter.

03Oct

MAA News

Conference: Dr Blum is again the Chairperson for the Neuro-Immunology Association who hold a conference every second year. With the Doctors gathered for this conference, it has previously presented an opportunity for our conference to follow. Dr Blum is happy to work towards this objective being achieved again in 2019. He will work towards creating a Brisbane Conference in mid-2019.

 

Medical Advisory Group for Myasthenics : The Committee drafted a 'Terms of…

Our Annual General Meeting was held on Sunday, 9 September with approximately 30 people in attendance.  A big thank you to those who made the effort to come and support your association.    It was great to see that most people took the opportunity to stay for lunch and chat with friends old…

The Myasthenia Alliance Australia has been speaking with some of the Australian neurologists who have expressed an interest in being involved with a national conference in Brisbane in 2019.  This would be a coup if it happens as traditionally the neurology conferences that are held in the days prior to our conferences have been in Sydney.  So, start saving your money so that you can attend this conference if and when we are able to confirm it.  More details will be…