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3Oct

Office Bearers Update

Since the newsletter went to publication we have been very lucky to have someone nominate for the permanent position of Secretary of the MGAQ.  More on this in the next newsletter.

3Oct

MAA News

Conference: Dr Blum is again the Chairperson for the Neuro-Immunology Association who hold a conference every second year. With the Doctors gathered for this conference, it has previously presented an opportunity for our conference to follow. Dr Blum is happy to work towards this objective being achieved again in 2019. He will work towards creating a Brisbane Conference in mid-2019.

 

Medical Advisory Group for Myasthenics : The Committee drafted a 'Terms of...

29Aug

MAA Celebrates 4 Years

4 July, 2014, the NSW Association for people with Myasthenia Gravis agreed to join with the Myasthenia Gravis Association of Queensland to form a National Alliance for Australians with a myasthenic condition. Congratulations to those initial members involved in making this commitment. 
The Associations are State registered entities and identify with State Regulations and Health Authorities. Prior to this day, there was no pathway for these...
29Aug

MGAQ Annual General Meeting

The Myasthenia Gravis Association of Queensland Inc.
Annual General Meeting
WHEN: Sunday, 9 September - 10.00am for 10.15am sharp
WHERE: Aspley Hornets Football Club, 50 Graham Road, Carseldine
Lunch is available at the venue with a varied and reasonably priced menu. Tea and coffee will be available...
29Aug

Myasthenia Gravis Conference 2019

The Myasthenia Alliance Australia has been speaking with some of the Australian neurologists who have expressed an interest in being involved with a national conference in Brisbane in 2019.  This would be a coup if it happens as traditionally the neurology conferences that are held in the days prior to our conferences have been in Sydney.  So, start saving your money so that you can attend this conference if and when we are able to confirm it.  More details will be...
27Jul

Dylan's Run to Raise Awareness

“A short email to the Qld Association on June 20th, followed by a reply indicating some possible options and suddenly Dylan has committed himself to running 5km in a Melbourne Fun Run raising money for myasthenia!  He was motivated to commit to this opportunity out of care and concern for his father. Dylan explains the importance of knowing that support is available to all Australians. He has committed the funds raised to ensuring the continued operations of the Myasthenia Alliance Australia...

27Jul

"Knowing Your MG"

JULY’S TOPIC: The Onset Age and Duration of Symptoms!

MG affects both men and women and occurs across all racial and ethnic groups.  It most commonly impacts young adult women (under 40) and older men (over 60), but it can occur at any age, including childhood.  Myasthenia gravis is not inherited nor is it contagious.  Occasionally, the disease may occur in more than one member of the same family.

More on this story, Page 4 of July’s Newsletter.

27Jul

Carers of those with Myasthenia - Closed facebook Group

There are many groups out there for those who suffer with Myasthenia Gravis.

It is often underestimated how much support carers need and also that they have a place/forum where they can chat confidentially. Looking after someone with a chronic illness where there is no cure can be soul destroying.

This page allows carers to talk confidentially together.

So if you like me have a partner with MG and want to talk to others in the same boat . . . please come and join us!

...
27Jun

June is Myasthenia Awareness Month and the MGAQ have nominated the theme as "Knowing Your MG"

What you need to know about your MG subtype:

•   The onset age and the duration of symptoms

•   Ocular versus generalised

•   The antibody involved (AChR, MuSK, others, seronegative)

•   The thymus gland status (hyperplasia, tumor, normal)

•   The treatment response (non-refractory, versus refractory) - Every medication you have tried for MG and the outcome.

In the coming months, we will focus on helping YOU better understand YOUR MG!...

27Jun

Myasthenia Alliance Australia Rituximab / MabThera Questionnaire

The MGAQ is supporting the Myasthenia Alliance Australia in learning more about the difficulties Australians are facing in accessing treatment with the drug Rituximab / MabThera. The alliance is asking that anyone in Australia who has been offered, or is currently receiving this drug treatment, please complete this questionnaire. 

Whilst there has been a good response to date, there are many more people who may be willing to share their experiences. Currently, responses are fairly...

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