Skip to main content

News

In response to the many and varied conversation from the MG Community in regard to the safety and considerations to be made in evaluating the suitability of the MG community for COVID vaccination, the MAA are indebted and extremely thankful to Associate Professor Stephen Reddel (neurologist), and also to those as listed by Dr Reddel, for bringing to us a highly informed discussion paper, inclusive of data, aimed to provide informed guidance on these many questions.

Your MAA Board have kept busy despite the pre-Christmas distractions. It was an unusual and challenging year in so many ways.

I would like to sincerely thank your committed MAA Board team for all their work during 2020 and for the support they have provided to me as we have explored and embraced the opportunities to improve the lives of those across Australia affected by MG in all its forms.

There is much work looming for 2021 and many opportunities to be developed. I hope that readers will continue to keenly follow our efforts and offer support as they are able.

26 {Feb}

ADVOCACY TOOLKIT

With the support of Terumo BCT, a tailored public affairs toolkit has been developed entitled “How can patient organisations ensure their voices are heard in public policy?” The aim is to help Australian patients in their advocacy efforts. This toolkit contains practical and easy-to-follow steps to facilitate outreach activities and discussions with public stakeholders.

Please link to this publication via 

In the latest partner event with Rare Voices Australia, the MAA has participated in a forum to discuss how the NDIS is functioning for people with rare disease. NDIS Assistant Directors for Community Engagement attended the meeting which was chaired by RVA CEO, Nicole Millis. The directors took notes and asked many questions.

A wide range of informative videos, Podcasts, and Journal items can now be accessed by visiting the “members only” section of the MGAQ website at

www.mgaq.org.au/members-only

All members will need a username and password to login and access the members only pages. 

The Myasthenia Alliance Board are seeking out Victorians who access Therapeutic Plasma Exchange as a regular or intermittent treatment option to help them better understand patient experiences. This is in preparation for a workshop we have been invited to attend.

If you can help, please call Susan on 1800 802 568.

09 {Jan}

MAA ANNOUNCEMENT

Covid-19 Vaccination Questions?

The MAA Medical Advisory Board have issued the following advice for people with Myasthenia who have questions about the Covid vaccinations currently being discussed.

21 {Dec}

MAA UPDATE

Your MAA Board have kept busy despite the pre-Christmas distractions. It has been an unusual and challenging year in so many ways and embracing the joy and connection of the Christmas period feels more important than ever.

I would like to sincerely thank your committed MAA Board team for all their work this year and for the support they have provided to me as we have explored and embraced the opportunities to improve the lives of those across Australia affected by MG in all its forms.

In 2021, the MGAQ will celebrate 30 years supporting people with Myasthenia Gravis in Queensland as a volunteer Association.

As part of our celebrations, we are offering our younger people a competition to help raise awareness by telling a story about their journey with MG.

MY MG JOURNEY

The competition is open to three age categories

Closed SLACK Community open to MG Sufferers aged 18-35 only

•  Specially created to meet the needs of this younger group who are thinking about careers, relationships, making a family, travelling etc.

•  Discussion to be guided by the participants and supported by the Doctors.

•  Find this group via the mgaq.org.au home page and look for the link under SOCIAL INTERACTION

Subscribe to MGAQ News

MessaGes Mailing List

Enter your details below to receive our monthly MessaGes Newsletter and upcoming News and Events directly to your Email inbox.