Over the coming months the MGAQ and the MAA will be emailing its members with requests to complete a number of surveys. These surveys form part of some new and important research currently taking place for persons living with MG and will cover a range of health topics.
This research is essential to the future shaping of health services; ensuring quality care and improving treatment, management and better disease understanding for persons living with MG.
As promised, the MAA Board have remained focused on their work during the COVID isolation period and are now excited to bring you some updates on the current projects.
The eNID Project!
The MGAQ Committee is very excited to bring to our members, a new looking and much enhanced Association website.
It is much easier to navigate and the key features are clearly displayed. Please go to www.mgaq.org.au and start exploring. The issue will be in deciding what to look at first. Good luck!
A reminder that nominations for membership of the management committee close on July 10.
The Annual General Meeting is scheduled for Sunday 13 September.
Further details about this meeting will be available as the committee knows more about what options are available.
International Myasthenia Gravis Awareness Month was recognised in Queensland on the 8th, 9th and 10th June 2020 with the support of the Brisbane City Council, the Ipswich City Council and the Toowoomba Regional Council.
The “Light Up the Story” campaign was initiated by the MGAQ and with the support of the Councils listed above, Brisbane, Toowoomba and Ipswich all displayed in the teal colour of recognition for Myasthenia Gravis Awareness.
Who: Australian adults with a diagnosis of Myasthenia Gravis.
What: Complete an online survey (45-60 mins).
Why: To investigate knowledge and awareness of symptoms, and perspective on whether allied health services would assist in managing symptoms.
June 14, 2020 - 10.00am AEST
The Myasthenia Gravis Association of Queensland Inc. and Synergy Video are inviting you to a scheduled Zoom meeting - June 14 2020 @ 10am AEST
The author is A/Prof Stephen Reddel (Neurologist NSW). He is a member of the MAA Medical Advisory Board and we sincerely thank him for his guidance at this time.
Over the past couple of months we have discussed five series of new services, podcasts and vodcasts, to be delivered to members. For two of those series, namely ‘My Journey with Myasthenia’ and ‘Ask the Expert’ podcasts, we need help from each and every member.
THE eNID PROJECT
Please make a donation so that we can continue to provide support for Myasthenia Gravis in Queensland.Make a Donation
Like Us on Facebook and spread the word to raise awareness of MG.
Join our MG discussion forum on Facebook.
Join our MG Carer's discussion forum on Facebook.
Visit the LAMBERT EATON (LEMonS) group on Facebook
Join our Parents/Grandparents group on Facebook.
Closed slack community open to MG sufferers aged 18-35 only