News

You only have until Friday, 12 July to register for this unique chance to hear from 12 speakers on 22 topics talk about the different Myasthenias and aspects of living with/caring for MG sufferers, the latest treatment options and areas of research into MG.

For more information about the conference or your interest to register,
Freecall: 1800 802 568 or Email: info@mgaq.org.au. 

The MAA website has been upgraded and it is fantastic.

Do check it out by visiting www.myastheniaallianceaustralia.com.au

This wonderful work has been gifted to the Alliance by Anna Wilen Clarke. A graphic designer by trade and a generous supporter of the Alliance she saw the great need and responded to the challenge. Work progressed quickly and the new site is full of great features. Our most sincere appreciation is extended to Anna. Her skill and generosity is very much appreciated. Her practical offer of support for others is keenly felt.

To celebrate Awareness Month the Committee again hosted a function on Sunday, 9 June allowing people with Myasthenia to gather together and to share. Well attended by regulars and by first timers, we gave hugs, wore teal ribbons, won lucky door prizes, shared a meal and conversation and came away much better informed.

PHYSICAL ACTIVITY, QUALITY OF LIFE, FATIGUE AND FUNCTION IN MYASTHENIA GRAVIS

Listen to ABC Radio 612 Brisbane, 10am, this Friday, June 14 during Rebecca Levingston’s programme to hear Dr Stefan Blum, along with member Karen Downes discuss Myasthenia Awareness month, the work of the Association, the forthcoming Conference and the condition in general.

You can listen the interview online via your phone or computer: https://www.abc.net.au/radio/brisbane/live/

Myasthenia Gravis Association of Queensland Inc.

MID-YEAR FUNCTION

WHEN: Sunday, 9 June, 2019 - 10am for 10.30am start

WHERE: Southern Cross Sports Club:

Corner Klumpp and Logan Rds, Mt.Gravatt (vehicular entrance is from Klumpp Rd).

Lunch is available at the venue with a varied and reasonably priced menu.

GUEST SPEAKER: Tracey Shaw from Carers QLD Australia.

Topic: Carers QLD services – Caring for Carers

2019 MYASTHENIA ALLIANCE AUSTRALIA

MYASTHENIA GRAVIS CONFERENCE

Preliminary Conference Program

• Dr. Stefan Blum
Overview of Myasthenia Gravis and Therapies.

• Assoc. Prof. Stephen Reddel
Rationale and Progress on the eNID Project.
Risks of Immunosuppression.

• Prof. Pam McCombe
IVIg for Myasthenia - new IVIg Guidelines.

• Dr James Morton (Haematologist)
Advanced Therapy Treatment including Plasma Exchange.

MEMBERSHIP SUBSCRIPTION RENEWAL

It’s that time of the year again, when Membership Subscriptions for the financial year 2019/2020 are due.

The envelope in which your newsletter is enclosed will advise you when your membership expires. If you look along the top line you should see “YOUR NAME” followed by some figures in smaller print than your address.

If you receive the newsletter by email and are unsure whether or not you are currently financial, please phone our 1800 802 568 freecall number or email treasurer@mgaq.org.au to enquire.

Preparations for the 2019 National Myasthenia Conference continue as registrations come in steadily. It is very exciting to see people coming from Victoria, New Zealand, NSW, ACT and of course, Queensland. It is hoped that there will also be attendees from South Australia, Western Australia and Tasmania. Facilitating the 'meeting of others' from each region will be a focus for the organisers. Making contact with people who share similar experiences will also be important. This may include people with LEMS or MuSK or Ocular or Congenital Myasthenia disease.

The MGAQ is very fortunate in that we receive many donations, large and small. These donations, in addition to the generous baseline support of the Queensland Health Department, enable us to continue our wide-ranging work for the Myasthenia community.

The support of our Corporate Sponsor, Ausenco, and an anonymous private sponsor who both very generously make major contributions each and every year is very gratefully received. This solid support gives us confidence in tackling new initiatives.